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How do you tell a person to choose between going to the bathroom and getting married?

How do you tell a person to choose between their medication or their therapy or their wheelchair or their program that helps them to be more independent and self-sufficient and getting married? If I lose PCA care I don’t have anyone to help me get out of bed and into my wheelchair. I don’t go to the bathroom, because I need help getting on the toilet. When I’m having an asthma attack, I would end up dead, because I cannot get to my rescue inhaler without help.

I want to make it clear that disability does not determine your ability to work or not.

I know autistic people who can work and some who cannot, for example.

There are many people with invisible disabilities….

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This transcends gender identity, sexual orientation, race, culture, etc.

It is a FACT that Medicaid is the only insurance those of us with home health care needs can utilize for said needs. While some private insurances MIGHT offer private duty nursing, many of us do not qualify for nursing. We also have to be careful how much we make, because we cannot afford to lose services.

It is a FACT that some of us who need these services are working. So, if Medicaid is the ONLY insurance we can use to get important life saving services or waiver services that buy us much needed equipment like lifts to get us in and out of bed or certain parts of wheelchairs we need that other insurance will not pay for, we have to follow the parameters to stay on Medicaid.

It can affect anyone with a disability, and maybe it might not be affecting a person right now.

However, if their disability progresses, this may become an issue they face, and they may have to end up getting divorced.




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